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Care reform: relatives of people with dementia press for rapid relief

Following the cabinet draft of the Care Reorganisation Act, relatives of people with dementia are calling for guaranteed support, clearly funded services and reliable help in their daily lives.

relatives of people with dementia are pressing, following the cabinet draft on of the care reform, for rapid and reliable relief. On 5 November, NDR reported on the specific expectations of affected families: more support at home, predictable funding and a dedicated contact person to guide them through applications, day-to-day care and crises. These demands are directed at the Federal Ministry of Health and the MPs who are now considering the draft in the Bundestag deliberations.

At the heart of the proposed policy is the Care Reorganisation Act. According to the government, it is intended to long-term care insurance stabilise, better coordinate services and strengthen preventive support. The key proposals include professional care guidance in the local area and easily accessible services. Relatives and professional associations welcome the direction, but are calling for binding deadlines and clear funding commitments so that local authorities, services and care advice centres can build capacity.

One particularly contentious question is how to limit rising out-of-pocket costs in care homes and the burden on those providing care at home. Associations warn that some proposed savings measures may not sufficiently ease the situation for families affected by dementia. They are calling for improvements to targeted support services, the recognition of care hours in the pension system and flexible budgets based on actual support needs.

For people with dementia, accessible local services are considered essential: day care tailored to their needs, mobile care, outreach advice and digital consultations that provide early support and prevent hospital stays. Care professionals point out that routes through the care system are often complex for people with dementia; without reliable care guidance, many services go unused.

The next steps are procedural: the Bundestag will debate the cabinet draft at a first reading and in specialist committees, followed by possible amendments and a final vote. Until then, the existing long-term care insurance rules remain in force. Observers expect the coalition to clarify key points such as care guidance, prevention and limiting out-of-pocket costs. Short-term transitional measures are considered worthwhile to relieve relatives who are already under considerable strain.

Improvements will only take effect once a law comes into force. Whether and when services become available therefore depends on the timetable and funding. Relatives of people with dementia make clear that they need the promised support to be implemented quickly – and a system that provides them with lasting, guaranteed assistance.

Editor: Clara Simonichek (Article created with AI assistance).

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